What happens when a symptomatic hemophilia carrier needs minor surgery? Will her increased risk of bleeding be recognized?

A 16-year-old with hemophilia B just won the Ryan White Youth Award for advocacy work most people don't start until decades into their diagnosis. Our founder was in the room when they called her name — and reflects on what it means that this generation gets to choose the spotlight instead of having it forced on them.

She spent decades being told she was fine. One doctor finally listened. Now Connie Montgomery is one of our community's fiercest advocates for women with bleeding disorders.

Debbie Murray spent decades experiencing symptoms of a bleeding disorder before finally receiving a diagnosis of hemophilia B at nearly 51.