Upcoming Events

For the first 20 attendees registering that have vWD, one $25 Amazon gift card will be provided per household to the email address used for registration, provided the participant remains on camera during the session. 

If you or someone you love has Von Willebrand Disease, there's something new on the horizon. A company called Hemab Therapeutics is studying a medicine called HMB-002, a simple shot given under the skin that's designed to help your body hold onto more of the von willebrand factor it needs. 

Join Tara O'Meara and Henry Mead from Hemab Therapeutics as they explain how HMB-002 works, what the VELORA studies involve, and how you or a family member might be able to take part. 

CHES One Drop
Nov
13
to Nov 15

CHES One Drop

One Drop welcomes individuals and an immediate family member living with all ultra-rare factor deficiencies (including FId, FIId, FVd, FVIId, FXd, FXId & FXIII), and ultra-rare platelet deficiencies (including Glanzmann’s Thrombasthenia and Platelet Disorders.)

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