For years, I thought everyone planned their lives around their heavy periods

🩸 Today, women can turn their bleeding into an actual number and get answers

Approximately one in five women with heavy menstrual bleeding has an underlying bleeding disorder, yet many wait years for a diagnosis.

I wore dark clothes to school, kept my backpack stocked like a field hospital, and did the quiet math of how long I could sit through a class before I had to get up. I thought that was just what having a body meant and that other girls were simply better at handling it.

It took me years to learn that what I'd accepted as normal was one of the most common signs of a bleeding disorder. And that the thing I'd been missing all along wasn't toughness. It was a common language — a way to turn my bleeding into an actual number a doctor couldn't shrug off.

Your period is data. Here's what I wish someone had told me.

🔗 Read the full column on Hemophilia News Today

🔗 ISTH Bleeding Assessment Tool

🔗 NEW MASAC guidelines on iron deficiency

Jennifer Lynne

All opinions expressed are Jennifer Lynne's and do not reflect those of her clients or affiliated organizations.

Jennifer Lynne was diagnosed with hemophilia B and von Willebrand disease in childhood. She is the founder of Girls Bleed Too, a platform dedicated to raising awareness about bleeding disorders in women and girls, and writes the weekly column "Hemophilia and Me" for Hemophilia News Today. A marketing and journalism graduate of the University of Wisconsin–Madison, Jennifer advocates for better diagnosis, research representation, and community for women who too often go unheard in the bleeding disorders world. She lives in Florida.

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Women with bleeding disorders are still navigating treatments not designed for us.